Fibromyalgia Organizations...
Sharing Helpful Information And
Resources Related to Fibromyalgia
Compliments of.... Merokee
Here is an updated list of Fibromyalgia organizations and related Groups in alphabetical order and their contact information that you may find helpful.
American Autoimmune Related Diseases Association, Inc.
22100 Gratiot Avenue
Eastpointe, MI 48021
Tel: (586)776-3900
Fax: (586)776-3903
Tel: (800)598-4668
Email: aarda@aarda.org
Internet: http://www.aarda.org/
American Chronic Pain AssociationP.O. Box 850
Rocklin, CA 95677
USA
Tel: (916)632-0922
Fax: (916)632-3208
Tel: (800)533-3231
Email: ACPA@pacbell.net
Internet: http://www.theacpa.org
American Pain Foundation - Working to improve the quality of life of people with pain by raising public awareness, providing practical information, promoting research, and advocating to remove barriers and increase access to effective pain management.
201 N. Charles St., Suite 170
Baltimore, MD 21201-4111
http://www.painfoundation.org/
Arthritis Foundation
P.O. Box 7669
Atlanta, GA 30357-0669
USA
Tel: (404)965-7627
Tel: (800)283-7800
Email: arthritisfoundation@arthritis.org
Internet: http://www.arthritis.org
CF Alliance
P.O. Box 9204
Bardonia, NY 10954
Tel: (845)548-0313
Fax: (845)792-0880
Email: cf_alliance@ yahoo.com
Internet: http://www.cf-alliance.org
The CfIDS Association of America, Inc.
PO Box 220398, Charlotte, NC 28222-0398
Phone: [800]442-3427 Fax: [704]365-3755
Website: www.cfids.org
Fibromyalgia Educational Systems
500 Bushaway Road
Wayzata, MN 55391
Internet: http://www.fmsedsys.com
Fibromyalgia Information Foundation
Fibromyalgia information and education from health professionals at Oregon Health and Science University. Website: http://www.myalgia.com/
Health Support Group Information: Support Group Listings
Find support groups in your region, by state, zip, or city.Website: www.immunesupport.com/supportgroups/
International Foundation for Functional Gastrointestinal Disorders (IFFGD)
PO Box 17864 Milwaukee, WI 53217
Phone: [414]964-1799 or [888]964-2001 (toll-free)
Website: www.iffgd.org
Interstitial Cystitis Association (ICA)
51 Monroe Street, Suite 1402 Rockville, MD 20850
Phone: [301]610-5300
Website: www.ichelp.org
Irish Chronic Pain Association
Coleraine House, Coleraine St.
Dublin, 7
Ireland
Tel: +353 1 804 7567
Fax: +353 1 8047567
Email: info@chronicpain.ie
Internet: www.chronicpain.ie
Jaw Joints & Allied Musculoskeletal Disorders Foundation, Inc. (JJAMD)
Forsyth Research Institute
140 The Fenway Boston, MA 02115-3799
Fax: [617]267-9020
Website: www.healthtouch.com
Lyme Disease Foundation
One Financial Plaza,18th Floor
Hartford, CT 06103-2610
Phone: [860]525-2000 or [800]886-LYME (toll-free 24-hr. line) Fax: [860]525-TICK
Website: www.lyme.org Massachusetts CFIDS Association
Website: www.masscfids.org
Multiple Chemical Sensitivity [MCS] Referral & Resources
508 Westgate Road, Baltimore, MD 21229-2343
Phone: [410]362-6400 Fax: [410]362-6401
Website: www.mcsrr.org
MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay, WI 54301-1243
USA
Tel: (920)336-5333
Fax: (920)339-0995
Tel: (877)336-5333
Email: mums@netnet.net
Internet: http://www.netnet.net/mums/
National CFIDS Foundation, Inc.
103 Aletha Rd
Needham, MA 02492-3931
Tel: (781)449-3535
Fax: (781)449-8606
Email: gailronda@aol.com
Internet: http://www.ncf-net.org
National Chronic Fatigue Syndrome & Fibromyalgia Association
P.O. Box 18426
Kansas City, MO 64133
Tel: (816)737-1343
Fax: (816)524-6782
Email: information@ncfsfa.org
Internet: http://www.ncfsfa.org National Fibromyalgia Association
2200 N. Glassell Street, Suite A
Orange, CA 92865
phone: [714]921-0150 / fax: [714]921-6920
Website: http://www.fmaware.org
NIH National Center for Complementary & Alternative Medicine [NCCAM]
Website: http://nccam.nih.gov
National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
National Institutes of Health Website: www.nih.gov/niams
Online newsletter: www.nih.gov/niams/news
National Fibromyalgia Partnership, Inc. [NFP]
PO Box 160, Linden, Virginia 22642-5609
Toll Free Phone: [866]725-4404 Fax: [866]666-2727
Website: www.fmpartnership.org Email: mail@fmpartnership.org
National Sleep Foundation
Website: www.sleepfoundation.org
National Vulvodynia Association [NVA]
Website: www.nva.org
Restless Legs Syndrome (RLS) Foundation, Inc.
819 Second Street, SW Rochester, MN 55902
Phone: [507]287-6465 Fax: [507]287-6312
Email: rlsfoundation@rls.org Website: www.rls.org
Society for Mitral Valve Prolapse Syndrome
PO Box 431 Itasca, IL 60143-0431
Phone: [708]250-9327 Fax: [708]773-0478
Website: www.mitralvalveprolapse.com
The TMJ Association, Ltd.
PO Box 26770 Milwaukee, WI 53226-0770
Phone: [262]432-0350 Fax: [262]432-0375
Website: www.tmj.org
TMJ & Stress Center
Website: www.myodata.com
You Can Do Your Own Research on Fibromyalgia
If your like Crazee8, you may want to spend some time doing additional research on the Web. There is a great deal of excellent information available if you know where to find it. The following is a list of fibromyalgia organizations and Web sites which offer helpful information:
- Medline Plus
Medline Plus Provides information on medical conditions and drugs, dictionaries, directories of medical/dental professionals and hospitals as well as access to organizations, consumer health libraries, and publications.
Website: www.nlm.nih.gov
- Clinical Trials Funded by the National Library of Medicine
This database contains over 11 million journal articles from Medline as well as a variety of life science journals. Also provides useful links to sites providing full test articles and other resources.
Website: www.pubmed.gov
- Clinical Trials Funded by the National Institutes of Health
Search by medical condition. This lists research studies needing volunteers.
Website: http://clinicaltrials.gov
- FDA Drug Information
Website: www.fda.gov/cder/drug/default.htm
- Healthfinder
Be sure to check out healthfinder.gov, the award-winning Federal website for consumers developed by the U.S. Department of Health & Human Services together with other Federal agencies. Healthfinder.gov links to carefully selected information and websites from over 1,500 health-related organizations. Healthfinder accepts no paid advertising. Website: www.healthfinder.gov
- Co-operate and Communicate for a Cure [Co-Cure]
News and research/treatment updates specifically on Fibromyalgia and Chronic Fatigue Syndrome via a moderated "information only" list available by subscription. Also contains an extensive archive of articles.
Website: www.co-cure.org
- National Fibromyalgia Research Association [NFRA]
This group offers information on the relationship between fibromyalgia and the central nervous system.
Website: www.nfra.net
- Oregon Fibromyalgia Foundation
This Web site contains a wide variety of articles on fibromyalgia.
Website: www.myalgia.com
- Well Spouse Foundation
The Well Spouse Foundation (WSF) website provides support and information to husbands, wives and partners of people with a chronic illness and/or disability. Website: www.wellspouse.org
Fibromyalgia & Chronic Fatigue Syndrome Resource
Here are Some Links to Helpful Sites with Information Related to the American Disabilities Act. Here Are Some Other Recommended Web Sites You May Find Very Helpful And Informative Fibrohugs Link  Fibrohugs Fibromyalgia Information and Support
The National Fibromyalgia Research Association
Fibromyalgia Network
P.O. Box 31750, Tucson, AZ 85751
(800) 853-2929
The American Fibromyalgia Syndrome Association
AFSA, Inc., 6380 E. Tanque Verde, Suite D, Tucson, AZ 85715
(520) 733-1570
The British Columbia Fibromyalgia Society
PO Box 42504
105 - 1005 Columbia Street
New Westminster, British Columbia
Canada V3M 6H5
Phone: (604) 878-7707
or in BC call toll-free: 1-888-353-MEBC (1-888-353-6322)
Colon Cleanse All natural oxygen based colon cleanse and constipationproduct. Guaranteed to work fast and without cramps.
Health Index - A directory of health industry websites organized alphabetically by topic.
The Melungeon Health Education and Support Network
  "A really contented man or woman has his or her yesterdays all filed away, his or her present in order, and his or her tomorrow subject to instant revision."
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