Fibromyalgia Organizations...
Organizations... With Helpful Information And
Resources Related to Fibromyalgia


Managing My Fibromyalgia Brings You This List of Helpful Fibromyalgia Organizations!



Compliments of.... Merokee
Here is an updated list of organizations and their contact information that you may find helpful.

American Pain Foundation - Working to improve the quality of life of people with pain by raising public awareness, providing practical information, promoting research, and advocating to remove barriers and increase access to effective pain management.
201 N. Charles St., Suite 170
Baltimore, MD 21201-4111
http://www.painfoundation.org/

Arthritis Foundation
Arthritis Foundation National Headquarters
P.O. Box 7669 Atlanta, GA 30357-0669 Phone: 800/283-7800 (toll-free)
Website: www.arthritis.org

The CfIDS Association of America, Inc.
PO Box 220398, Charlotte, NC 28222-0398
Phone: [800]442-3427 Fax: [704]365-3755
Website: www.cfids.org

Fibromyalgia Information Foundation
Fibromyalgia information and education from health professionals at Oregon Health and Science University. Website: http://www.myalgia.com/

Health Support Group Information: Support Group Listings
Find support groups in your region, by state, zip, or city.Website: www.immunesupport.com/supportgroups/

International Foundation for Functional Gastrointestinal Disorders (IFFGD)
PO Box 17864 Milwaukee, WI 53217
Phone: [414]964-1799 or [888]964-2001 (toll-free)
Website: www.iffgd.org

Interstitial Cystitis Association (ICA)
51 Monroe Street, Suite 1402 Rockville, MD 20850
Phone: [301]610-5300
Website: www.ichelp.org

Jaw Joints & Allied Musculoskeletal Disorders Foundation, Inc. (JJAMD)
Forsyth Research Institute
140 The Fenway Boston, MA 02115-3799
Fax: [617]267-9020
Website: www.healthtouch.com

Lyme Disease Foundation
One Financial Plaza,18th Floor
Hartford, CT 06103-2610
Phone: [860]525-2000 or [800]886-LYME (toll-free 24-hr. line) Fax: [860]525-TICK
Website: www.lyme.org

Massachusetts CFIDS Association
Website: www.masscfids.org

Multiple Chemical Sensitivity [MCS] Referral & Resources
508 Westgate Road, Baltimore, MD 21229-2343
Phone: [410]362-6400 Fax: [410]362-6401
Website: www.mcsrr.org

National CFIDS Foundation
Website: www.NCF-NET.org

National Fibromyalgia Association
2200 N. Glassell Street, Suite A
Orange, CA 92865
phone: [714]921-0150 / fax: [714]921-6920
Website: http://www.fmaware.org

NIH National Center for Complementary & Alternative Medicine [NCCAM]
Website: http://nccam.nih.gov

National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
National Institutes of Health Website: www.nih.gov/niams
Online newsletter: www.nih.gov/niams/news

National Fibromyalgia Partnership, Inc. [NFP]
PO Box 160, Linden, Virginia 22642-5609
Toll Free Phone: [866]725-4404 Fax: [866]666-2727
Website: www.fmpartnership.org Email: mail@fmpartnership.org

National Sleep Foundation
Website: www.sleepfoundation.org

National Vulvodynia Association [NVA]
Website: www.nva.org

Restless Legs Syndrome (RLS) Foundation, Inc.
819 Second Street, SW Rochester, MN 55902
Phone: [507]287-6465 Fax: [507]287-6312
Email: rlsfoundation@rls.org Website: www.rls.org

Society for Mitral Valve Prolapse Syndrome
PO Box 431 Itasca, IL 60143-0431
Phone: [708]250-9327 Fax: [708]773-0478
Website: www.mitralvalveprolapse.com

The TMJ Association, Ltd.
PO Box 26770 Milwaukee, WI 53226-0770
Phone: [262]432-0350 Fax: [262]432-0375
Website: www.tmj.org

TMJ & Stress Center
Website: www.myodata.com

You Can Do Your Own Research on Fibromyalgia

If your like Crazee8, you may want to spend some time doing additional research on the Web. There is a great deal of excellent information available if you know where to find it. The following is a list of Web sites which offer helpful information:

  • Medline Plus
    Medline Plus Provides information on medical conditions and drugs, dictionaries, directories of medical/dental professionals and hospitals as well as access to organizations, consumer health libraries, and publications.
    Website: www.nlm.nih.gov


  • Clinical Trials Funded by the National Library of Medicine
    This database contains over 11 million journal articles from Medline as well as a variety of life science journals. Also provides useful links to sites providing full test articles and other resources.
    Website: www.pubmed.gov


  • Clinical Trials Funded by the National Institutes of Health
    Search by medical condition. This lists research studies needing volunteers.
    Website: http://clinicaltrials.gov


  • FDA Drug Information
    Website: www.fda.gov/cder/drug/default.htm


  • Healthfinder
    Be sure to check out healthfinder.gov, the award-winning Federal website for consumers developed by the U.S. Department of Health & Human Services together with other Federal agencies. Healthfinder.gov links to carefully selected information and websites from over 1,500 health-related organizations. Healthfinder accepts no paid advertising. Website: www.healthfinder.gov


  • Co-operate and Communicate for a Cure [Co-Cure]
    News and research/treatment updates specifically on Fibromyalgia and Chronic Fatigue Syndrome via a moderated "information only" list available by subscription. Also contains an extensive archive of articles.
    Website: www.co-cure.org


  • National Fibromyalgia Research Association [NFRA]
    This group offers information on the relationship between fibromyalgia and the central nervous system.
    Website: www.nfra.net


  • Oregon Fibromyalgia Foundation
    This Web site contains a wide variety of articles on fibromyalgia.
    Website: www.myalgia.com


  • Well Spouse Foundation
    The Well Spouse Foundation (WSF) website provides support and information to husbands, wives and partners of people with a chronic illness and/or disability. Website: www.wellspouse.org


Fibromyalgia & Chronic Fatigue Syndrome Resource




Here are Some Links to Helpful Sites with Information Related to the American Disabilities Act.




Here Are Some Other Recommended Web Sites You May Find Very Helpful And Informative

Fibrohugs Link

Fibrohugs Fibromyalgia Support

The National Fibromyalgia Research Association

Fibromyalgia Network
P.O. Box 31750, Tucson, AZ 85751
(800) 853-2929

The American Fibromyalgia Syndrome Association
AFSA, Inc., 6380 E. Tanque Verde, Suite D, Tucson, AZ 85715
(520) 733-1570

The British Columbia Fibromyalgia Society
PO Box 42504
105 - 1005 Columbia Street
New Westminster, British Columbia
Canada V3M 6H5
Phone: (604) 878-7707

or in BC call toll-free: 1-888-353-MEBC (1-888-353-6322)

Colon Cleanse All natural oxygen based colon cleanse and constipationproduct. Guaranteed to work fast and without cramps.

Health Index - A directory of health industry websites organized alphabetically by topic.

The Melungeon Health Education and Support Network


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